Episode #276: Raising Children with Profound Special Needs with Sarah Kernion

Raising children with profound special needs means stepping into truth, even when it’s uncomfortable.

I had such a meaningful conversation with Sarah Kernion about what it really looks like to raise children with profound, nonspeaking autism, and how that reality often differs from the public narrative. Sarah shares her journey as a mom, from those early intuitive concerns to navigating diagnosis, therapy, and building a truly collaborative team.

We talk openly about the emotional weight families carry and why honoring that lived experience matters. Sarah brings such a powerful perspective on communication, reminding us that AAC enhances connection and that growth is not always linear. One of my favorite takeaways is how she reframes communication, not as a single outcome, but as a shared process between child, caregiver, and provider.

We also dive into what makes a great team. The biggest shift is moving away from hierarchy and toward true collaboration, where parents feel heard and valued. Sarah’s work through Inchstones is all about helping families feel seen, supported, and empowered in that journey.

#autism #speechtherapy

Today’s Guest:

Sarah Kernion is first and foremost a mom to three beautiful and healthy children, two of whom have profound nonspeaking autism. She is a speaker, advocate, writer, and podcast host who helps caregivers of profoundly autistic children step into their power. She works to shift the autism narrative through radical acceptance at home, in schools, and across community and corporate spaces, so families are met with reality, dignity, and meaningful support.

What’s Inside: